Comments on: This is very difficult for me (a very long, non card post) http://www.ebethonline.com/2008/01/15/this-is-very-difficult-for-me-a-very-long-non-card-post/ Sharing my creations with paper, ink and jewelry making............and a little bit about me! Wed, 07 Jan 2009 14:07:23 +0000 http://wordpress.org/?v=2.5.1 By: Audrey and Autism :: neux http://www.ebethonline.com/2008/01/15/this-is-very-difficult-for-me-a-very-long-non-card-post/#comment-3339 Audrey and Autism :: neux Thu, 07 Feb 2008 23:58:55 +0000 http://www.ebethonline.com/2008/01/15/this-is-very-difficult-for-me-a-very-long-non-card-post/#comment-3339 [...] may have read Elizebeth’s recent post on Audrey’s initial assessment of autism, so you know something is going on. Today we [...] [...] may have read Elizebeth’s recent post on Audrey’s initial assessment of autism, so you know something is going on. Today we [...]

]]> By: Audrey and Autism at Neumann’s Own http://www.ebethonline.com/2008/01/15/this-is-very-difficult-for-me-a-very-long-non-card-post/#comment-3338 Audrey and Autism at Neumann’s Own Thu, 07 Feb 2008 23:49:15 +0000 http://www.ebethonline.com/2008/01/15/this-is-very-difficult-for-me-a-very-long-non-card-post/#comment-3338 [...] may have read Elizebeth’s recent post on Audrey’s initial assessment of autism, so you know something is going on. Today we [...] [...] may have read Elizebeth’s recent post on Audrey’s initial assessment of autism, so you know something is going on. Today we [...]

]]> By: Lydia http://www.ebethonline.com/2008/01/15/this-is-very-difficult-for-me-a-very-long-non-card-post/#comment-3290 Lydia Thu, 31 Jan 2008 06:54:31 +0000 http://www.ebethonline.com/2008/01/15/this-is-very-difficult-for-me-a-very-long-non-card-post/#comment-3290 The Lord has given me the privilege to work in Sunday School with two wonderful children with Autism. They are so special and I know that He goes before you in all things. As a matter of fact I love the way that that these children have challanged me to see through the eyes of Love. They are so highly intelligent that I sometimes wonder if we are the ones that need them to help us cope in this life of ours. You are blessed to be the mother of such a special child. May God surround you with much joy, peace and wonder at His creation. Ms Lydia The Lord has given me the privilege to work
in Sunday School with two wonderful children
with Autism. They are so special and I know
that He goes before you in all things. As a
matter of fact I love the way that that these
children have challanged me to see through
the eyes of Love. They are so highly
intelligent that I sometimes wonder if we
are the ones that need them to help us cope
in this life of ours. You are blessed to
be the mother of such a special child. May
God surround you with much joy, peace and
wonder at His creation. Ms Lydia

]]> By: Pam (4Hounds) http://www.ebethonline.com/2008/01/15/this-is-very-difficult-for-me-a-very-long-non-card-post/#comment-3274 Pam (4Hounds) Thu, 24 Jan 2008 15:39:06 +0000 http://www.ebethonline.com/2008/01/15/this-is-very-difficult-for-me-a-very-long-non-card-post/#comment-3274 Elizebeth--- I have worked with adults with severe learning disabilities for many years...with Autism and many other diagnoses. I've known parents that have given up and not dealt with their child's diagnosis. I've also known parents that have been by their child's side and fought for them every single step along the way. These are the children that break down every 'barrier' and every 'norm' presented to them, who astonish and amaze everyone with the strides they've made throughout their lives. It seems that God has been guiding you, preparing you, for a very long time already....your interest and work for Autism during these past years has already given you and your baby girl SUCH a head-start. To the core of my being, I truly believe that God NEVER gives us more than we can handle. Through all the days, months and years to come, I hope you'll try to remember that...He's already shown you that He thinks YOU are the perfect Mom for Audrey. You may be following a different path than you had anticipated, but, with you by her side, her life will STILL be amazing. I hope you gain strength in knowing that you, Audrey, and your entire family will be in so many people's prayers. Pam Elizebeth—
I have worked with adults with severe learning disabilities for many years…with Autism and many other diagnoses. I’ve known parents that have given up and not dealt with their child’s diagnosis. I’ve also known parents that have been by their child’s side and fought for them every single step along the way. These are the children that break down every ‘barrier’ and every ‘norm’ presented to them, who astonish and amaze everyone with the strides they’ve made throughout their lives. It seems that God has been guiding you, preparing you, for a very long time already….your interest and work for Autism during these past years has already given you and your baby girl SUCH a head-start. To the core of my being, I truly believe that God NEVER gives us more than we can handle. Through all the days, months and years to come, I hope you’ll try to remember that…He’s already shown you that He thinks YOU are the perfect Mom for Audrey. You may be following a different path than you had anticipated, but, with you by her side, her life will STILL be amazing. I hope you gain strength in knowing that you, Audrey, and your entire family will be in so many people’s prayers.
Pam

]]> By: Cindy Haffner http://www.ebethonline.com/2008/01/15/this-is-very-difficult-for-me-a-very-long-non-card-post/#comment-3273 Cindy Haffner Thu, 24 Jan 2008 13:29:02 +0000 http://www.ebethonline.com/2008/01/15/this-is-very-difficult-for-me-a-very-long-non-card-post/#comment-3273 Elizebeth my heart is heavy for you this morning, a big hug to you, you daughter is beautiful, a big hug for all your family. Cindy Elizebeth my heart is heavy for you this morning, a big hug to you, you daughter is beautiful, a big hug for all your family.

Cindy

]]> By: Amber H. (bambi64 on SCS) http://www.ebethonline.com/2008/01/15/this-is-very-difficult-for-me-a-very-long-non-card-post/#comment-3270 Amber H. (bambi64 on SCS) Thu, 24 Jan 2008 11:48:15 +0000 http://www.ebethonline.com/2008/01/15/this-is-very-difficult-for-me-a-very-long-non-card-post/#comment-3270 {{{{{{{{{{{HUGS}}}}}}}}}}}} Elizebeth. You know we are here for you whenever you need to talk. Your little girl is adorable. Congrats on the DT spots! {{{{{{{{{{{HUGS}}}}}}}}}}}} Elizebeth. You know we are here for you whenever you need to talk. Your little girl is adorable.
Congrats on the DT spots!

]]> By: mj albright http://www.ebethonline.com/2008/01/15/this-is-very-difficult-for-me-a-very-long-non-card-post/#comment-3269 mj albright Thu, 24 Jan 2008 07:59:04 +0000 http://www.ebethonline.com/2008/01/15/this-is-very-difficult-for-me-a-very-long-non-card-post/#comment-3269 Wait, You know what I mean.... I become speechless when I hear things about kids and I wish I could help. Wait, You know what I mean….
I become speechless when I hear things about kids and I wish I could help.

]]> By: mj albright http://www.ebethonline.com/2008/01/15/this-is-very-difficult-for-me-a-very-long-non-card-post/#comment-3268 mj albright Thu, 24 Jan 2008 07:55:52 +0000 http://www.ebethonline.com/2008/01/15/this-is-very-difficult-for-me-a-very-long-non-card-post/#comment-3268 My heart is aching for you Elizebeth. Big HUGS! My heart is aching for you Elizebeth.
Big HUGS!

]]> By: JeanAnn http://www.ebethonline.com/2008/01/15/this-is-very-difficult-for-me-a-very-long-non-card-post/#comment-3260 JeanAnn Wed, 23 Jan 2008 07:15:46 +0000 http://www.ebethonline.com/2008/01/15/this-is-very-difficult-for-me-a-very-long-non-card-post/#comment-3260 Elizabeth, You don't know me, I saw one of your cards on SCS and came to your blog. I just want you to know that I feel very strongely that you will be one blessed family for the sacrafices that you all will make for such a sweet little girl. My heart goes out to you and to Ava who will wonder why her sister needs so much special attention. Your Angels will be with you and your loved ones watching and protecting you during this special road that you will travel. God bless for sharing your pain and letting others reach out to try to ease some of it for you and to pray for you and your family. Many wonderful blessing will come your way. Hugs, JeanAnn Elizabeth,
You don’t know me, I saw one of your cards on SCS and came to your blog. I just want you to know that I feel very strongely that you will be one blessed family for the sacrafices that you all will make for such a sweet little girl.

My heart goes out to you and to Ava who will wonder why her sister needs so much special attention. Your Angels will be with you and your loved ones watching and protecting you during this special road that you will travel. God bless for sharing your pain and letting others reach out to try to ease some of it for you and to pray for you and your family. Many wonderful blessing will come your way.
Hugs,
JeanAnn

]]> By: Fe http://www.ebethonline.com/2008/01/15/this-is-very-difficult-for-me-a-very-long-non-card-post/#comment-3239 Fe Sat, 19 Jan 2008 18:53:28 +0000 http://www.ebethonline.com/2008/01/15/this-is-very-difficult-for-me-a-very-long-non-card-post/#comment-3239 No matter how long you have suspected that there is something "not right" with your child, you are never prepared for the moment you are told your child is Autistic. I know you don't feel it right now but you and your daughter are very lucky as you already have a great deal of knowledge and understanding of Autism and how that may affect her. When my son was diagnosed I knew hardly anything at all. Now, however, I could write a book!! :-) I notice someone has already posted Ode to Special Moms (by Erma Bombeck)in your comments. I think is fabulous. Another one I like is this: "Welcome to Holland" By Emily Perl Kingsley I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...... When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting. After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland." "Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy." But there's been a change in the flight plan. They've landed in Holland and there you must stay. The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place. So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts. But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned." And the pain of that will never, ever, ever, ever go away...because the loss of that dream is a very very significant loss. But...if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland. and it's very true! Wishing you all the best. Hugs Fe x No matter how long you have suspected that there is something “not right” with your child, you are never prepared for the moment you are told your child is Autistic. I know you don’t feel it right now but you and your daughter are very lucky as you already have a great deal of knowledge and understanding of Autism and how that may affect her. When my son was diagnosed I knew hardly anything at all. Now, however, I could write a book!! :-)

I notice someone has already posted Ode to Special Moms
(by Erma Bombeck)in your comments. I think is fabulous. Another one I like is this:

“Welcome to Holland” By Emily Perl Kingsley

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this……

When you’re going to have a baby, it’s like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It’s all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, “Welcome to Holland.”

“Holland?!?” you say. “What do you mean Holland?? I signed up for Italy! I’m supposed to be in Italy. All my life I’ve dreamed of going to Italy.”

But there’s been a change in the flight plan. They’ve landed in Holland and there you must stay.

The important thing is that they haven’t taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It’s just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It’s just a different place. It’s slower-paced than Italy, less flashy than Italy. But after you’ve been there for a while and you catch your breath, you look around…. and you begin to notice that Holland has windmills….and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy… and they’re all bragging about what a wonderful time they had there. And for the rest of your life, you will say “Yes, that’s where I was supposed to go. That’s what I had planned.”
And the pain of that will never, ever, ever, ever go away…because the loss of that dream is a very very significant loss. But…if you spend your life mourning the fact that you didn’t get to Italy, you may never be free to enjoy the very special, the very lovely things … about Holland.

and it’s very true!
Wishing you all the best.
Hugs
Fe x

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