The headache that wont go away and some GREAT news!
I have had a wicked headache for 2 or 3 weeks! It was gone yesterday but it is back with a vengeance today. The past two weeks I have also been dizzy and nauseous, either just a little so that I feel mildly sick or so bad that I am curled up in a ball and can’t move or eat. Today is mild, but with the headache it feels worse.
But I wanted to let everyone know how our trip to the UW went this morning. After more testing and a REALLY big packet and questionnaire for me to fill out we then found out what group we are in. We are in the treatment group!!!
So that means every Friday for the next 13 weeks I will take the girls down there for parent training classes, and Ava will be in childcare through them. (She loves it there, she totally thinks we go for her!) And after the parent training classes are done they will send someone out to our house 20-25 hours a week for her ABA therapy for 2 years! Along with that they will continue to monitor her and assess her throughout her childhood. And she will be able to continue going to her speech and OT once a week and having the birth-3 specialist come to our house.
This is just so BIG. I was preparing for us to be in the monitoring program only and so I had started to investigate different treatment programs in our area. There were 2 that had been suggested by our speech therapist, one was not accepting anyone at all. The other was conducting interviews now for 3 possible openings this summer. We knew that we would be able to get her treatment but we had no idea how long we would have to wait. The average wait for treatment at the UW is 6-9 months. So it looked like no matter what, if we weren’t chosen to receive treatment then we would be waiting.
When they told us today it was a huge relief. I did not want to cry because I have been crying every week and I can barely get out sometimes what I am trying to say. But when I was driving home I would get teary eyed and then it would go away, and just repeat itself over and over the whole way home. Because this is a research program we also do not have to pay anything for her treatment. The birth-3 program is paid with our tax dollars, so really we are paying but we don’t pay extra for that service. And we are lucky that our insurance covers her speech and OT and PT. The 2 years of free treatment is such a huge blessing.
I don’t know what I did to deserve such a wonderful blessing. We have really been lucky with everything at the UW, being accepted in the research at all, being able to get the diagnosis and now being in the treatment program. For as difficult as everything has been, this has been pretty easy. This is really just unbelievable right now.
I have to thank everybody for their emails, cards, thoughts and prayers. You have helped lift me throughout the past couple of weeks and I know that your prayers helped. THANK YOU!!!!!!
Filed under Audrey |6 Responses to “The headache that wont go away and some GREAT news!”
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Oh, Elizebeth. This is such wonderful, amazing news. My eyes are teary just reading it!! No one knows better than I how important and what a blessing this kind of early intervention is. I’m goose-pimply with happiness for you, my sweet friend! HURRAY!!!
Elizabeth,
I work in the medical field, I don’t know you or what kind of stress you are under but your symptoms warrant an immediate trip to your doctor. You need to take care of you if you are going to take care of your loved ones. While your headache may be from stress the severity of your symptoms call out for you to be checked out by your doctor. Please don’t delay.
Linda
WAOW! This is great news!!! That’s wonderful that you can get all this, and free! It’s huge! It sure wasn’t like that here!
I’m SO happy for you, this is gonna be a great boost for Audrey and give her (and you) great foundations.
Now that you are relieved, I hope you can let go of some of that ugly stress and take some time for yourself to be back on your feet!
((hugs))♥
Dont question why YOU deserve something! You totally do, and so does your sweet Audrey deserves every chance for a better life
So I say celebrate. Im happy things are going in a good directions, and I swear someday the tears wont have to flow so much.
Hugs my friend-
Lauren
Huge hugs–what fabulous news! I am so happy for you and Audrey!
Ebeth –
I’m so glad to hear that things are falling into place for Audrey’s treatments. Since Sean gave me the news about Audrey I’ve been reading every article that I can find in order to learn more about Autism. I can only imagine how overwhelmed you must feel and what a huge blessing these treatment opportunities are. I can easily imagine you crying every day…sometimes for sadness and sometimes for joy.
Please know that my thoughts and prayers are with you and your family. I also believe that no one is ever given a challenge that they are not capable of handling.
Thanks for posting updates. Love and Hugs from all of us here in SLC.
–Max